Last modified: 22/04/2016
Last reviewed: 22/04/2016
Exco InTouch is a private company that transforms individual health experiences into support, insight and understanding for others. We do this by enabling people to share personal health experiences and information. In turn this provides support, aids self-management, improves interactions with professionals, with the aim of improving day-to-day health and well-being.
TARGET My Hives is owned and operated by Exco InTouch Limited registered in England and Wales under company number 5285980. Its registered office address is: Unit 6, Wheatcroft Business Park, Landmere Lane, Nottingham NG12 4DG, United Kingdom. Exco InTouch Limited is registered with the Information Commissioner’s Office under the Data Protection Act 1998 under registration number Z9648865.
Our Service’s content, or any content on other sites linked to from Our Service, is never a substitute for professional medical advice. Even if another user appears to be a medical professional they are not in a position to undertake a physical examination or understand your full medical history. Therefore you should always speak to a doctor or other health practitioner about your condition and/or treatment or changes to your condition and/or treatment. In an emergency dial your local or national emergency telephone number. Never delay seeking advice or dialling emergency services because of something that you have read on Our Service.
If you use Our Service it is likely that this will involve sharing information about your health experiences. We recommend using anonymous, unique usernames although it’s important to understand that any information or experiences you share can carry the risk of revealing your identity to others. It is important that you understand how our data sharing relationships work and what information is shared with our different partners and users. We have set out further information in our privacy statement which we encourage you to read. To view our Privacy Statement click here.
As a user of Our Service you can choose at any time whether their healthcare experiences are shared or not shared with the TARGET My Hives community in the "Social Settings" area of the app.
Our Service is for the use of individuals for non-commercial purposes only. To use information gathered from TARGET My Hives commercially or to reach TARGET My Hives users with commercial interest unless expressly authorised by Exco InTouch Limited is against these terms.
If you wish to use Our Service for commercial purposes related to your role within healthcare provision you may be able to extend your account to include a role (e.g. Health Care Professional (HCP), Patient Organisation, Researcher, Provider, etc). In doing so, you will have to comply with Terms of Engagement for Affiliates or HCPs.
• any part of Our Service;
• any equipment or network on which Our Service is stored;
• any software used in the provision of Our Service; or
• any equipment or network or software owned or used by any third party.
You may not obtain or attempt to obtain any materials or information from Our Service through any means not intentionally made available to you through Our Service.
Your contributions must:
• be accurate (where they state facts);
• be genuinely held (where they state opinions); and
• comply with applicable law in the UK and in any country from which they are posted.
Contributions must not:
• contain any material that is obscene, offensive, hateful, inflammatory or defamatory of any person;
• promote any discrimination based on race, sex, religion, nationality, disability, sexual orientation or age;
• infringe any copyright, database right, trade mark or any other right of any other person;
• be threatening, abuse or invade another’s privacy, or cause annoyance, inconvenience or needless anxiety;
• be likely to harass, upset, embarrass alarm or annoy any other person;
• be used to impersonate any person, or to misrepresent your identity or affiliation with any person;
• give the impression that they emanate from us, if this is not the case; or
• advocate, promote or assist any unlawful act such as (by way of example only) copyright infringement or computer misuse.
The TARGET My Hives Community is associated with health organisations and other approved affiliates and may contain material which is the intellectual property of that affiliate or individual community users. Although the affiliates may provide material and take an active role within the community, nothing in these Terms imposes an obligation to the affiliates or individuals.
You will not be able to use Our Service properly unless you register with us. By registering and becoming an account holder, you agree that we may provide you with information about Our Service (whether by email or any other medium) that we consider appropriate. You may opt-out of receiving these communications using the unsubscribe links provided in the communication materials.
When you register initially you will have access to a patient account. If you subsequently wish to have an account type which represents your role within healthcare provision (e.g. medical professional, researcher, community admin) which enables access to additional services provided by Exco InTouch, your use of the new account type and additional services may be subject to additional terms and conditions which will be made available to you as part of the extension process.
In order to register with us and become an account holder, you will be invited to provide a password, a user name and an email. You are entirely responsible for maintaining the confidentiality of your password and account. You will never be required to reveal your full password to any representative or agent of Exco InTouch. If you forget your password, we may ask you to answer a specific question such as your username, date of birth or postcode. Furthermore, you are entirely responsible for any and all activities that occur under your account.
You agree to notify firstname.lastname@example.org immediately of any unauthorised use of your account or any other breach of security. We will not be liable for any loss or damage that you may incur as a result of someone else using your password or account, either with or without your knowledge. However, you could be held liable for loss or damage incurred by us or another party due to someone else using your account or password. You may not use anyone else’s account at any time, without the express permission of the account holder. If you think that someone else has access to your password you should change it immediately.
We also may provide links or references on Our Service to the websites of other companies, charities or other organisations and individuals whether affiliated with us or not. By clicking on these links and accessing these other websites, you will be leaving Our Service. Some of these links are added by users and we are not in a position to verify every link posted on Our Service.
Similarly, Our Service may be accessed through third party links over which we have no control. We make no warranties or representations of any kind as to the accuracy, currency, or completeness of any information contained in such websites and shall have no liability for any damages or injuries of any kind arising from such content or information. Inclusion of any third party link does not imply an endorsement or recommendation by Exco InTouch Limited.
You may link to Our Service, provided you do so in a way that is fair and legal and does not damage our reputation or take advantage of it, but you must not establish a link in such a way as to suggest any form of association, approval or endorsement on our part where none exists.
The entire contents of Our Service are protected by copyright, database rights and other intellectual property rights which are owned by us or our affiliates including health organisations and individuals. The contents of Our Service may not be copied, displayed, downloaded, distributed or republished other than for non-commercial individual reference with all copyright or other proprietary notices retained, and thereafter may not be recopied, reproduced or otherwise redistributed. Nothing contained herein shall be construed as conferring by implication, estoppels or otherwise any licence or right under any patent or trademark of Exco InTouch Limited, or any third party.
When using Our Service, you accept that communication with us will be mainly in electronic format. We will contact you by email or provide you with information by posting notices on Our Service. For contractual purposes, you agree to this electronic means of communication and you acknowledge that all contracts, notices, information and other communications that we provide to you electronically comply with any legal requirement that such communications be in writing. This condition does not affect your statutory rights.
All notices given by you to us, including any complaints that you might have about Our Service, must be given to Exco InTouch Limited at Unit 6, Wheatcroft Business Park, Landmere Lane, Nottingham NG12 4DG, United Kingdom or by email to email@example.com. We may give notice to you at the email address you provide to us when you become an account holder.
TARGET My Hives is a technology platform. All views, opinions, and knowledge expressed on the service by account holders or visitors are the sole opinions of the account holders or visitors themselves and are likely to relate to their own specific circumstances which may be different to yours. The owners of Exco InTouch Limited and the affiliates we work with make no warranties or representations of any kind as to the accuracy, currency, completeness, reliability, operability, or legality of information or opinions contained or expressed within Our Service. Commentary and other materials posted on Our Service are not intended to amount to advice on which reliance should be placed. We and the affiliates therefore disclaim all liability and responsibility arising from any reliance placed on such materials by any visitor to Our Service, by any account holders, or by anyone who may be informed of any of its contents.
Further, Our Service is provided to you free of charge on an "as is" and "as available" basis. You agree that access to and use of Our Service and the content available on Our Service is at your own risk. To the fullest extent permitted by law, Our Service and any individual person connected to Our Service and any party involved in creating, producing or delivering Our Service hereby exclude:
• All conditions, warranties and other terms that might otherwise be implied by statute, common law or the law of equity; and
• Any liability for any direct, indirect or consequential loss or damage incurred by you in connection with the use, inability to use, or that results from the use of Our Service or websites linked to Our Service, including, without limitation any liability for loss of income or revenue, loss of business, loss of profit, loss of data, loss of goodwill, wasted management or office time, and for any other loss or damage of any kind, however arising and whether caused by tort (including negligence), breach of contract or otherwise, even if foreseeable.
This does not affect our liability for death or personal injury arising from our negligence, nor our liability for fraudulent misrepresentation or misrepresentation as to a fundamental matter, nor any other liability which cannot be excluded or limited under applicable law.
No waiver by us of any of these terms and conditions shall be effective unless it is expressly stated to be a waiver and is communicated to you in writing in accordance with the methods specified above.
If any of these terms and conditions or any provisions of these terms and conditions are determined by any competent authority to be invalid, unlawful or unenforceable to any extent, such term, condition or provision will to that extent be severed from the remaining terms, conditions and provisions, which will continue to be valid to the fullest extent permitted by law.
Access to and use of this Service are currently available without charge. We reserve the right to charge a fee for access to or use of this Service in the future. You will be given prior notice in the event we find it necessary to charge a fee for use of this Service and if you do not wish to pay such fee you will be able to end your use of the Service.
These terms and conditions and any document expressly referred to in them represent the entire agreement between us in relation to access to and your use of Our Service and supersede any prior agreement, understanding or arrangement between us, whether oral or in writing.
These terms and conditions and the agreement between you and us will be governed by English Law. Any dispute arising from, or related to, these terms and conditions or our agreement shall be subject to the non-exclusive jurisdiction of the courts of England and Wales.
Copyright ©2016 Exco InTouch Limited
Last modified: 22/04/2016
Last reviewed: 22/04/2016
As a member of the TARGET My Hives community you are expected to follow a few basic guidelines to ensure that every user feels safe and comfortable engaging with others in the community.
Professional Health Information
Information posted on TARGET My Hives can support, but will not replace the relationship between you and your doctor or any other healthcare professionals. Information from this service may inform your discussions as well as the exploration of treatment options with your healthcare professionals. You should always consult a healthcare professional if considering changing your medication or treatment.
Your participation on TARGET My Hives should be with respect, honesty, and in the spirit of supporting and learning from your fellow users.
TARGET My Hives is not a forum to create negative impressions about identifiable individuals. Negative and damaging references to identifiable individuals may be edited or deleted either by TARGET My Hives community administrators. We hope that users will respect the right of other community members to present their individual health experiences, regardless of whether or not they are in agreement, and that all disagreements will be expressed considerately.
Publishing Content (Questions/Posts/Replies/Private Messages)
Anything published on TARGET My Hives should be understood as being the views of that individual and does not necessarily represent the views of a particular patient group or of Exco InTouch Limited as a company.
As a member of the TARGET My Hives community, you agree to publish information that is true and correct to the best of your knowledge and you agree to publish information that is primarily drawn from your expert knowledge or personal experience.
Any content published in TARGET My Hives can be read, used, reproduced, and cited by other members of TARGET My Hives, but you always maintain the option of deleting any content you have submitted at any time.
When you publish information from third party sources, such as information about new treatments, you are asked to provide references and links wherever possible.
If an account is suspected of violating any of these guidelines as stipulated above, particularly in the instance of bullying or spamming, that member's account may be restricted or banned.
Copyright ©2016 Exco InTouch Limited
Last modified: 22/04/2016
Last reviewed: 22/04/2016
An affiliate refers to any non-profit health organisation, patient group, individual, hospital, or medical professional with which TARGET My Hives is in partnership and who has agreed to these Terms of Engagement for Affiliates and HCPs. This generally refers to partners who are involved in the TARGET My Hives community.
By being part of the TARGET My Hives community you agree to the following:
1. Exco InTouch Limited provides TARGET My Hives free of charge to health organisations and other affiliates as well as users (community members). Any future standard updates and maintenance of the service will be at the cost of Exco InTouch Limited.
2. Exco InTouch Limited provides support for the platform to health organisations and other affiliates via the TARGET My Hives support team and automatic systems. Premium support as well as extra features and services may be offered separately in the future.
3. TARGET My Hives community members can choose whether or not their healthcare experiences are shared with Research Partners. Healthcare experiences include the posts, comments, questions and answers and indeed any content that users provide that offers insight into living with a particular condition. TARGET My Hives community members can opt out of this in their individual account settings.
4. Exco InTouch Limited will not share personal details, such as email addresses, with or on behalf of other individuals, organisations or research partners without the users’ consent.
6. Exco InTouch and health organisations or other affiliates will keep the communities free of commercial intrusion by making sure users do not use posts or questions to advertise their products. Advertising controlled by Exco InTouch may be used in the future across TARGET My Hives
7. There is no direct contractual relationship between the health organisation or other affiliate and any other actual or potential research partner via TARGET My Hives unless specifically arranged.
8. There is no contractual relationship between the TARGET My Hives community and TARGET My Hives research partners. However, if the user, where invited and eligible, contributes to a particular project, then there may be terms and conditions specific to that activity by which the user may be bound.
9. To support TARGET My Hives relationship with its research partners, promotion, research or information gathering on the platform by, or on behalf of, research partners or sponsors of health organisations or other affiliates may be done only with the express, prior consent of Exco InTouch Limited.
We reserve the right to change these Terms from time to time. This may be for reasons including legal or administrative requirements, or to correct an inaccurate statement. We will endeavour to provide notice of the change to community admins where we deem this necessary. We encourage you to review these Terms periodically to check you understand the latest version.
Copyright ©2016 Exco InTouch Limited
Last modified: 22/04/2016
Last reviewed: 22/04/2016
At Exco InTouch we believe in the potential of shared experiences to transform lives and promote health understanding. Because this may involve you sharing sensitive information about your health and treatment we also believe in the importance of clear and transparent privacy guidelines. As a user of TARGET My Hives it’s important you know how we use and share your data and how you can control what happens to information you share with TARGET My Hives.
Below is guide to how TARGET My Hives manages your personal information:
Who are you?
TARGET My Hives is owned and operated by Exco InTouch Limited registered in England and Wales under company number 5285980. Its registered office address is: Unit 6, Wheatcroft Business Park, Landmere Lane, Nottingham NG12 4DG, United Kingdom and Exco InTouch Limited is registered with the Information Commissioner’s Office under the Data Protection Act 1998, registration number Z9648865. For more information about Exco InTouch go to www.excointouch.com.
Who can see my personal identifiable information?
None of your personally identifiable information (i.e. email address, postcode/zipcode, date of birth) is ever visible to other users or third parties without your explicit consent. We encourage you to choose a non-identifiable username as this is visible to other users within the TARGET My Hives community.
Who can see the blogs and questions I write?
When you agree to share your experiences under the “Social Settings” function you are agreeing to the sharing elements of your experiences with the TARGET My Hives community. If there is anything which you are not comfortable sharing with the TARGET My Hives community, you should not include it in your posts, questions, comments, or answers.
Who can see my non-personally identifiable information?
TARGET My Hives may anonymise and aggregate information collected through Our Service (e.g. polls, symptom surveys, etc). This information may then be published as a study or shared with our research partners.
How can I control who sees my information?
You always control who can see your information and how it is shared. At any time you can change your data sharing settings within the “Social Settings” function to stop sharing information you submit. You will still able to use the TARGET My Hives service.
Will I be contacted for research purposes?
We may contact you for research purposes, such as taking part in surveys or clinical trial recruitment. In this case it will always be TARGET My Hives that contacts you, not a research partner directly as we never share your email address with third parties. You can opt out of being contacted for research using the unsubscribe links provided in the communication materials.
Patient Organisations and other Affiliates
Health organisations and other affiliates of TARGET My Hives can access and export anonymised and aggregated data reports from users within the TARGET My Hives community who have chosen to share their data. An affiliate refers to any non-profit health organisation, patient group, individual, hospital, or medical professional with which TARGET My Hives is in partnership and who has agreed to and filled out the Terms of Engagement for Affiliates and HCPs.
Doctors and other Healthcare Professionals
TARGET My Hives welcomes Healthcare Professionals (HCPs). When Doctors and Healthcare Professionals use TARGET My Hives, information will not be made available to them unless a patient chooses to share this information with them. If patients consent, this information can also be used and aggregated for research and audit by the doctors in their academic studies.
Institutions and Industry
Health Institutions (e.g. NHS or Department of Health) and Companies (Pharmaceuticals or Medical Devices) can use TARGET My Hives to research the experience of patients. This may be analysis of data submitted by users of the TARGET My Hives service, or through more structured studies alongside doctors and patients. This only happens where users give their consent to share information and users can opt out at any time as set out above.
Do you store clinical information?
We offer a system that has an ultra-secure database for clinical data storage (compliant with regulations) and a separate database to allow patients to control their own data. This satisfies the ethical and legal requirements of safety of clinical data whilst providing the flexibility needed to offer secondary data services.
Is TARGET My Hives integrated with hospital systems?
TARGET My Hives is not integrated with any hospital systems and does not directly share your medical information with healthcare professionals. As a user of Our Service, you have the right to share your stored information with you healthcare professional
The TARGET My Hives services are free for users and affiliates (e.g. non-profit health organisations). In addition to our licensed software we work with research partners allowing them to access anonymised and aggregated data from TARGET My Hives services.
This only happens where users give their consent to share information and users can opt out at any time as set out above.
Exco InTouch provides industry standard security across all of the TARGET My Hives Services and complies with health IT standards. In addition, we have secure connections (HTTPS) with 128 bit encryption certificates across all the areas where personal details are used and stored. All passwords assigned during the signup processes are protected using salted cryptographic hashing, and cannot be decrypted.
All user data is hosted in protected environments with secure backups performed regularly and in compliance with ISO 27001.
Our service is hosted on third party servers with may be outside the EEA. We have contracts in place with our third party service providers which require them to implement security measures to protect the data they hold and the current security provisions in place are described above.
Persons under the age of 18 are prohibited from creating an account and becoming a member of TARGET My Hives. In registering as a member you are acknowledging that you are aged 18 or above. We do not knowingly collect personal information from persons under 18. If we become aware that a person under 18 has provided us with personal information, we take steps to remove such information and will delete the individuals account.
By becoming a member of the TARGET My Hives community, you agree that we may provide you with information about Our Service (whether by email or any other medium) that we consider appropriate. You may opt-out of receiving these communications using the unsubscribe links provided in the communication materials.
If at any time you wish to stop using Our Service or want to withdraw from Our Service, you can do this from within the “Personal Information” section of the TARGET My Hives app by choosing the “delete my account” option. This will delete all references to you on the servers and withdraw you from the TARGET My Hives service. You have the right to re-join Our Service at any time, however, if your account has been deleted we will not be able to resurrect any historical data.
How do I make a subject access request?
All the information we hold about you is available to you when using Our Service and is contained within your TARGET My Hives app. In order to provide the service to you, TARGET My Hives keeps a mirror of this data on the servers and as we have explained, you are totally in control of the options around access, availability, communications and content. If you decide that you do not wish TARGET My Hives to continue to hold this information, you should withdraw from the service as detailed in 8 above.
Under the Data Protection Act 1998, you are entitled to request a copy of the information we hold about you if you so wish. Please put your request in writing and send it to TARGET My Hives, Unit 6, Wheatcroft Business Park, Landmere Lane, Nottingham NG12 4DG, United Kingdom. We reserve the right to charge the statutory fee of £10.
Have additional questions?
Please contact us at firstname.lastname@example.org
Copyright ©2016 Exco InTouch Limited
The information provided in this website should not be seen as a substitute for medical or other professional help, support or care information. As a patient you should always refer any questions relating to your health to your doctor or other health care practitioner. In providing this service MyHives.com aims to make its contribution to the health and quality of life of patients. However, MyHives.com cannot be held responsible for the choices that the user of this service makes.
This Privacy Notice applies to the personal data of consumers that is collected or used by the MyHives.com website (myhives.com) and its associated websites. MyHives.com is provided through Exco InTouch Ltd UK. MyHives.com appreciates the interest you have shown in the service and we take the privacy of our users and the security of their personal information very seriously. MyHives.com will not share your personal information with any other third parties
The website and mobile application were developed with funding and support from Novartis Pharma and as such Novartis Pharma AG have no access to your personal data.
We ask you to share your personal data with us for purposes including, but not limited to:
• Receiving information about the development of MyHives.com services;
• Helping us to develop products and create campaigns that are designed around you, optimise patient services and continuously improve MyHives.com services
We process your personal data only for those purposes that we have communicated with you. If we use it for other (closely related) purposes, additional data protection measures will be implemented if required by law. Exco InTouch who is the provider of MyHives.com is responsible for the storage of the data and By registering your interest in MyHives.com you agree that your personal data will be stored in a secured database by Exco InTouch. You will have the ability to unsubscribe from further updates by following the unsubscribe link in the email communications you have agreed to receive.
While MyHives.com websites are not generally targeted at children under the age of 16, it is Target-Communitys' policy to comply with the law when it requires parent or guardian permission before children's information is collected, used or disclosed.
MyHives.com strongly recommends that parents take an active role in supervising the online activities of their children. If you believe we have collected personal data from a person who is under the age of 16, please contact us at email@example.com
We recognise and take seriously our responsibility to protect the personal data you entrust to MyHives.com from loss, misuse or unauthorised access. Target-Community uses a variety of security technologies and organisational procedures to help protect your personal data. For example, we implement access controls, use firewalls, secure servers and we encrypt certain types of data, such as financial information and other sensitive data.
A cookie is a piece of data stored on the user’s hard drive containing information about the user. Users are in control of turning cookies on or off. The use by Exco InTouch of a cookie is only linked to personally identifiable information for the purpose of site personalisation and recognition. (ie: myhives.com recognises users so that online forms, for example, can be completed automatically with no need for re-typing personal data). Exco InTouch uses IP addresses to analyse trends, administer the site, track users’ movements, and gather broad demographic information for internal use only
The services that MyHives.com provides are always evolving and the form and nature of the services that MyHives.com provides may change from time to time without prior notice to you. For this reason, we reserve the right to change or add to this Privacy Notice from time to time and will post any material revisions on our websites.
We will post a prominent notice on our privacy notice page to notify you of any significant changes to this Privacy Notice, and will indicate at the top of the notice when it was most recently updated. We encourage you to check back often to review the latest version.
The new Privacy Notice will be effective upon posting. If you do not agree to the revised notice, you should consider stopping using the MyHives.com pages. By continuing to access or make use of our services after the changes become effective, you agree to be bound by the revised privacy notice.
Contact us at firstname.lastname@example.org. Please note that this email address is strictly for privacy related queries.
Do you suffer from chronic urticaria, having persistent itchy hives which sometimes are accompanied by swelling of your eyes, mouth, or other parts of your body? If this is the case, TARGET will help you connect with others who suffer from the same symptoms around you or anywhere in the world.
Up to 1% of the population suffers from chronic urticaria (74 million) and there is no reason why they can't communicate. Our mission is to connect everyone suffering with chronic urticaria. By building this community we also hope to increase the knowledge by providing real world evidence to physicians on chronic urticaria, helping them advance the science and treatment of this disease.
ERT is a global data and technology company that minimizes uncertainty and risk in clinical trials so that our customers can move ahead with confidence. With more than 45 years of clinical and therapeutic experience, ERT balances knowledge of what works with a vision for what’s next, so it can adapt without compromising standards.
Powered by the company’s EXPERT® technology platform, ERT’s solutions enhance trial oversight, enable site optimization, increase patient engagement, and measure the efficacy of new clinical treatments while ensuring patient safety. Over the past four years, more than half of all FDA drug approvals came from ERT-supported studies. Pharma companies, Biotechs, and CROs have relied on ERT solutions in 9,500+ studies spanning more than three million patients to date. By identifying trial risks before they become problems, ERT enables customers to bring clinical treatments to patients quickly – and with confidence.
Exco InTouch (part of eResearchTechnology Inc.) is the owner of this website and the associated mobile application platform (TARGET My Hives), and controls all information collected and maintained through the website and mobile application. As such no other parties have access to your personal data. MyHives.com appreciates the interest you have shown in the service and we take the privacy of our users and the security of their personal information very seriously. MyHives.com will not share your personal information with any third parties.
You will find below answers to the most frequently asked questions about the TARGET My Hives Platform